Keywords: TSC, >12 months, <36 months, Neurogenetic Syndromes, Biomarkers of Treatment Outcomes in Neurodevelopmental Disorders
What is being studied?
The purpose of this study is to examine the effects of behavioral intervention on social-communication skills in infants and toddlers with Tuberous Sclerosis Complex (TSC), and to identify behavioral strategies required to maximize treatment outcomes in infants with TSC. Participants will be integrated into an existing early intervention study targeting social communication function in infants.
Who Can Participate?
If you have a child between the ages of 12-36 months, and with a clinical diagnosis of TSC, you may be eligible to participate in this study.
What does the study involve?
Participation requires attending behavioral intervention classes at UCLA twice a week for 8 weeks. Because this behavioral intervention is parent-mediated, a parent must be available to attend the sessions. Participants are also given behavioral assessments before entry into behavioral intervention, after exiting intervention, and at a 4-month follow up visit. Behavioral assessments generally take up to 3 hours to complete.
Whom should I contact to get involved?
If you are interested in participating in this study, please contact Scott Huberty at (310) 825-8738, or by email at