Keywords: TSC, >12 months, <36 months, Neurogenetic Syndromes, Biomarkers of Treatment Outcomes in Neurodevelopmental Disorders
What is being studied?
The purpose of this study is to examine the effects of behavioral intervention on social-communication skills in infants and toddlers with Tuberous Sclerosis Complex (TSC), and to identify behavioral strategies to maximize treatment outcomes in infants and toddlers with TSC. Participants will be enrolled in an early intervention program called JASPER (Joint Attention, Symbolic Play, Engagement, and Regulation) to target social communication functioning.
Who Can Participate?
If you have a child between the ages of 12-36 months, and with a clinical diagnosis of TSC, you may be eligible to participate in this study.
What does the study involve?
Participation requires attending behavioral intervention sessions at UCLA once per week for 12 weeks. Because this behavioral intervention is parent-mediated, a parent must be available to attend these sessions. Participants are also given behavioral assessments before entry into behavioral intervention, after exiting intervention, and at 3- and 12-month follow up visits. Behavioral assessments generally take up to 4 hours to complete.
Whom should I contact to get involved?
If you are interested in participating in this study, please contact Carly Hyde at (310) 825-8738, or by email at